भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | LITHIN JOSE . P |
|
| UHID | ICHHCE_CHEN_L._4248 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SUDHARSHAN . P |
|
| UHID | ICHHCE_CHEN_S._4241 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NANDHINI .C |
|
| UHID | ICHHCE_CHEN_N._4235 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | APARNA . S |
|
| UHID | ICHHCE_CHEN_A._4233 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VIRAAJ ADHVAITH . P |
|
| UHID | ICHHCE_CHEN_V._4232 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Joel Antony .S |
|
| UHID | ICHHCE_CHEN_J._4231 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aarya More |
|
| UHID | KEM_BOM_AM_4230 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Niemann-Pick type C | |
| Estimated cost of treatment | 19,176,820 | View full Profile |
| Make a Donation | ||
| Name | SURENDRA KUSHWAHA |
|
| UHID | AIIMSBHPL_BHPL_SK_4192 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 8,100,000 | View full Profile |
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| Name | NIHARIKA KUSHWAHA |
|
| UHID | AIIMSBHPL_BHPL_NK_4191 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 1,800 | View full Profile |
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| Name | POONAM PRAJAPATI |
|
| UHID | AIIMSBHPL_BHPL_PP_4190 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Atypical hemolytic uremic syndrome | |
| Estimated cost of treatment | 23,500,000 | View full Profile |
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| Name | SANSKAR BILGAIYAN |
|
| UHID | AIIMSBHPL_BHPL_SB_4189 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 720,000 | View full Profile |
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| Name | B O PUSHPA SINGH |
|
| UHID | AIIMSBHPL_BHPL_BS_4188 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 33,600 | View full Profile |
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| Name | TANISH PAWAR |
|
| UHID | AIIMSBHPL_BHPL_TP_4186 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 17,472,000 | View full Profile |
| Make a Donation | ||
| Name | RISHI BAGHEL |
|
| UHID | AIIMSBHPL_BHPL_RB_4185 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 2,025,000 | View full Profile |
| Make a Donation | ||
| Name | VIRAT DHAKKAD |
|
| UHID | AIIMSBHPL_BHPL_VD_4184 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 8,160,000 | View full Profile |
| Make a Donation | ||
| Name | KARAN SAHU |
|
| UHID | AIIMSBHPL_BHPL_KS_4182 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 13,056,000 | View full Profile |
| Make a Donation | ||
| Name | Vetrivel .V |
|
| UHID | ICHHCE_CHEN_V._4176 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VARSHITH .A |
|
| UHID | ICHHCE_CHEN_V._4156 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VARSHAN . R |
|
| UHID | ICHHCE_CHEN_V._4155 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RANJITH KUMAR .S |
|
| UHID | ICHHCE_CHEN_R._4154 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | ROSHIKA .R |
|
| UHID | ICHHCE_CHEN_R._4148 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KAMAR . M |
|
| UHID | ICHHCE_CHEN_K._4147 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | ARMAAN .M |
|
| UHID | ICHHCE_CHEN_A._4146 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | ANIKA SHARMA |
|
| UHID | AIIMSBHPL_BHPL_AS_4112 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 3,250,000 | View full Profile |
| Make a Donation | ||
| Name | AARUNYA BORKAR |
|
| UHID | AIIMSBHPL_BHPL_AB_4111 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 1,680,000 | View full Profile |
| Make a Donation | ||
| Name | IBAD KHAN |
|
| UHID | AIIMSBHPL_BHPL_IK_4110 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Atypical hemolytic uremic syndrome | |
| Estimated cost of treatment | 11,750,000 | View full Profile |
| Make a Donation | ||
| Name | JENISHA IMAGRACY . A |
|
| UHID | ICHHCE_CHEN_J._4107 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DHIVJAA SRI .S.A |
|
| UHID | ICHHCE_CHEN_D._4105 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nephropathic Cystinosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Hariharan .K.R. |
|
| UHID | ICHHCE_CHEN_H._4078 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | PRANEETH VIJAYAN .P |
|
| UHID | ICHHCE_CHEN_P._4062 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nephropathic Cystinosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VASIKARAN R. |
|
| UHID | ICHHCE_CHEN_VR_4061 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DHURUVAN .R |
|
| UHID | ICHHCE_CHEN_D._4059 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nephropathic Cystinosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NISHVANTH V. |
|
| UHID | ICHHCE_CHEN_NV_4058 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | PRAGATHISH E. |
|
| UHID | ICHHCE_CHEN_PE_4056 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MEGHNA .S.K |
|
| UHID | ICHHCE_CHEN_M._4049 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DAVID KUMAR .D |
|
| UHID | ICHHCE_CHEN_D._4048 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | YESHWANTH .L.D |
|
| UHID | ICHHCE_CHEN_Y._4046 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nephropathic Cystinosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | PORKKODI L. |
|
| UHID | ICHHCE_CHEN_PL_4037 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MAIKIL .K |
|
| UHID | ICHHCE_CHEN_M._4009 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Jeel Chauhan |
|
| UHID | KEM_BOM_JC_4008 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 209,700,000 | View full Profile |
| Make a Donation | ||
| Name | THANISHWARAN .B |
|
| UHID | ICHHCE_CHEN_T._4007 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | JALA VENKATA PADMAJA |
|
| UHID | ICHHCE_CHEN_JP_4006 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Chithirai saaral . J |
|
| UHID | ICHHCE_CHEN_C._4005 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Vedant Dahitule |
|
| UHID | KEM_BOM_VD_4003 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 515,424,000 | View full Profile |
| Make a Donation | ||
| Name | Jenisha Patil |
|
| UHID | KEM_BOM_JP_4002 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 52,200,000 | View full Profile |
| Make a Donation | ||
| Name | LITHESH .S |
|
| UHID | ICHHCE_CHEN_L._4001 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KITHIYON . K |
|
| UHID | ICHHCE_CHEN_K._4000 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Pooja .E |
|
| UHID | ICHHCE_CHEN_P._3999 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aravinth . R |
|
| UHID | ICHHCE_CHEN_A._3998 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Fabry Disease diagnosed before significant end-organ damage. | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Umar Palte |
|
| UHID | KEM_BOM_UP_3983 | |
| Institution | King Edward Memorial Hospital | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 448,000 | View full Profile |
| Make a Donation | ||