भारत सरकार
Government of India

About The Portal

“It’s not how much we give but how much love we put into giving.” - Mother Teresa. .

There are about 7000 known rare diseases, affecting around 8% of the world’s population. 75% of rare disease patients happen to be children.

The last two decades have seen emergence of new therapies for a few rare disorders which previously had no hope of survival. By using innovative techniques and advanced scientific technology, researchers have developed novel drugs which are showing miraculous results.

However, even though some of these new therapies are highly promising, they are prohibitively expensive and lifelong in many situations, placing immense strain on the resources of the affected families. What an agony for the parents to see their affected child suffering or dying for lack of access to the treatment, due to the cost! The situation is equally distressing to physicians who are involved in the care of patients with these rare disorders.

Together we can fulfill our collective social obligations of securing treatment for these children suffering from Rare Diseases.

Please donate whole-heartedly and generously for this noble cause. Small or large, your contributions, good wishes and love will surely be a huge pillar of support for the patients, their families and the physicians. Together we can give hope and a new lease of life where otherwise there would have been none.