भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | iniyavan R |
|
| UHID | ICHHCE_CHEN_IR_3442 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | kathirvelan V |
|
| UHID | ICHHCE_CHEN_KV_3418 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aaisha Nakhuda |
|
| UHID | KEM_BOM_AN_3417 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 200,000 | View full Profile |
| Make a Donation | ||
| Name | Harish S |
|
| UHID | ICHHCE_CHEN_HS_3416 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Jaishika J |
|
| UHID | ICHHCE_CHEN_JJ_3415 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Azlan Shaikh |
|
| UHID | KEM_BOM_AS_3414 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Nieman Pick Disease Type A | |
| Estimated cost of treatment | 72 | View full Profile |
| Make a Donation | ||
| Name | shaik aliyas ismail sahebgari Bibi fathima S |
|
| UHID | ICHHCE_CHEN_SS_3400 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pradee willi syndroe | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Thamizhini R |
|
| UHID | ICHHCE_CHEN_TR_3413 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | puviyarasan R |
|
| UHID | ICHHCE_CHEN_PR_3412 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | sri varshitha T |
|
| UHID | ICHHCE_CHEN_ST_3411 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mokith V |
|
| UHID | ICHHCE_CHEN_MV_3399 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MOKITHA D |
|
| UHID | ICHHCE_CHEN_MD_3398 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 16,000,000 | View full Profile |
| Make a Donation | ||
| Name | Vishal P |
|
| UHID | ICHHCE_CHEN_VP_3338 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mokith V |
|
| UHID | ICHHCE_CHEN_MV_3336 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Almajid M |
|
| UHID | ICHHCE_CHEN_AM_3319 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mitansh jain A |
|
| UHID | ICHHCE_CHEN_MA_3318 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Ajay K |
|
| UHID | ICHHCE_CHEN_AK_3317 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Shobana M |
|
| UHID | ICHHCE_CHEN_SM_3316 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Saran J |
|
| UHID | ICHHCE_CHEN_SJ_3315 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Suvathika k |
|
| UHID | ICHHCE_CHEN_SK_3314 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | PALAK KOUR |
|
| UHID | AIIMSBHPL_BHPL_PK_3313 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Atypical hemolytic uremic syndrome | |
| Estimated cost of treatment | 11,750,000 | View full Profile |
| Make a Donation | ||
| Name | UTKARSH PARMAR |
|
| UHID | AIIMSBHPL_BHPL_UP_3312 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 94,783,000 | View full Profile |
| Make a Donation | ||
| Name | BHANUPRATAP SINGH CHOUHAN |
|
| UHID | AIIMSBHPL_BHPL_BS_3311 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 18,768,000 | View full Profile |
| Make a Donation | ||
| Name | VANSH KEWAT |
|
| UHID | AIIMSBHPL_BHPL_VK_3310 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 13,104,000 | View full Profile |
| Make a Donation | ||
| Name | AMAR VISHWAKARMA |
|
| UHID | AIIMSBHPL_BHPL_AV_3308 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 14,688,000 | View full Profile |
| Make a Donation | ||
| Name | NITYA RAI |
|
| UHID | AIIMSBHPL_BHPL_NR_3307 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 2,520,000 | View full Profile |
| Make a Donation | ||
| Name | NIHARIKA SAINI |
|
| UHID | AIIMSBHPL_BHPL_NS_3306 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Atypical hemolytic uremic syndrome | |
| Estimated cost of treatment | 11,750,000 | View full Profile |
| Make a Donation | ||
| Name | ZUNAIRA SYED |
|
| UHID | AIIMSBHPL_BHPL_ZS_3305 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 3,240,000 | View full Profile |
| Make a Donation | ||
| Name | SOM PUROHIT |
|
| UHID | AIIMSBHPL_BHPL_SP_3303 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 42,125,800 | View full Profile |
| Make a Donation | ||
| Name | AYUSH C XESS |
|
| UHID | AIIMSBHPL_BHPL_AC_3302 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 5,700,000 | View full Profile |
| Make a Donation | ||
| Name | Pavin prasanth S |
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|
| UHID | ICHHCE_CHEN_PS_3301 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Larons Syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | B/o Santhiya S |
|
| UHID | ICHHCE_CHEN_BS_3300 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Tejesh R |
|
| UHID | ICHHCE_CHEN_TR_3299 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | vivian sivaa L V |
|
| UHID | ICHHCE_CHEN_VL_3298 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dhasheelan T |
|
| UHID | ICHHCE_CHEN_DT_3297 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mithin raj M |
|
| UHID | ICHHCE_CHEN_MM_3296 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Puviarasu M |
|
| UHID | ICHHCE_CHEN_PM_3295 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Tejash R |
|
| UHID | ICHHCE_CHEN_TR_3294 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kavin S |
|
| UHID | ICHHCE_CHEN_KS_3293 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Boobeshram R |
|
| UHID | ICHHCE_CHEN_BR_3292 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Rohith J |
|
| UHID | ICHHCE_CHEN_RJ_3291 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Katelyn A |
|
| UHID | ICHHCE_CHEN_KA_3290 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | BOOVENTHIRAN J |
|
| UHID | ICHHCE_CHEN_BJ_3289 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Akalya A |
|
| UHID | ICHHCE_CHEN_AA_3282 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mohamed wafeek F |
|
| UHID | ICHHCE_CHEN_MF_3281 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kowshika sri D |
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|
| UHID | ICHHCE_CHEN_KD_3275 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sasvanth B |
|
| UHID | ICHHCE_CHEN_SB_3274 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Yaazan S R |
|
| UHID | ICHHCE_CHEN_YS_3213 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Anish M S |
|
| UHID | ICHHCE_CHEN_AM_3212 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | JOYSON ELIJAH N |
|
| UHID | ICHHCE_CHEN_JN_3190 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||