भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | Pavin prasanth S |
.jpg)
|
| UHID | ICHHCE_CHEN_PS_3301 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Larons Syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | B/o Santhiya S |
|
| UHID | ICHHCE_CHEN_BS_3300 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Tejesh R |
|
| UHID | ICHHCE_CHEN_TR_3299 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | vivian sivaa L V |
|
| UHID | ICHHCE_CHEN_VL_3298 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dhasheelan T |
|
| UHID | ICHHCE_CHEN_DT_3297 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mithin raj M |
|
| UHID | ICHHCE_CHEN_MM_3296 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Puviarasu M |
|
| UHID | ICHHCE_CHEN_PM_3295 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Tejash R |
|
| UHID | ICHHCE_CHEN_TR_3294 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kavin S |
|
| UHID | ICHHCE_CHEN_KS_3293 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Boobeshram R |
|
| UHID | ICHHCE_CHEN_BR_3292 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Rohith J |
|
| UHID | ICHHCE_CHEN_RJ_3291 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Katelyn A |
|
| UHID | ICHHCE_CHEN_KA_3290 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | BOOVENTHIRAN J |
|
| UHID | ICHHCE_CHEN_BJ_3289 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Akalya A |
|
| UHID | ICHHCE_CHEN_AA_3282 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mohamed wafeek F |
|
| UHID | ICHHCE_CHEN_MF_3281 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kowshika sri D |
.jpg)
|
| UHID | ICHHCE_CHEN_KD_3275 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sasvanth B |
|
| UHID | ICHHCE_CHEN_SB_3274 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Yaazan S R |
|
| UHID | ICHHCE_CHEN_YS_3213 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Anish M S |
|
| UHID | ICHHCE_CHEN_AM_3212 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | JOYSON ELIJAH N |
|
| UHID | ICHHCE_CHEN_JN_3190 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | ALWIN SAM DANIEL N |
|
| UHID | ICHHCE_CHEN_AN_3189 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | HEVIN DEV E |
|
| UHID | ICHHCE_CHEN_HE_3130 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | YAMINI S |
|
| UHID | ICHHCE_CHEN_YS_3125 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DHRUVIKA KUMAR |
|
| UHID | AIIMSBHPL_BHPL_DK_3063 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 13,891,680 | View full Profile |
| Make a Donation | ||
| Name | MANU JAIN |
|
| UHID | AIIMSBHPL_BHPL_MJ_3060 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 9,261,120 | View full Profile |
| Make a Donation | ||
| Name | VISHNU SHARMA |
|
| UHID | AIIMSBHPL_BHPL_VS_3059 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 456,000 | View full Profile |
| Make a Donation | ||
| Name | HARSHIT MALVIYA |
|
| UHID | AIIMSBHPL_BHPL_HM_3051 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 9,261,120 | View full Profile |
| Make a Donation | ||
| Name | YASHWANT LUHAR |
|
| UHID | AIIMSBHPL_BHPL_YL_3050 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 300,000 | View full Profile |
| Make a Donation | ||
| Name | GOKUL N |
|
| UHID | ICHHCE_CHEN_GN_3047 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | SARVESH S |
|
| UHID | ICHHCE_CHEN_SS_3038 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RAEES AI QURESHI N |
|
| UHID | ICHHCE_CHEN_RN_3037 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 16,000,000 | View full Profile |
| Make a Donation | ||
| Name | Param Pipaliya |
|
| UHID | KEM_BOM_PP_3026 | |
| Institution | King Edward Memorial Hospital | |
| Disease | ||
| Estimated cost of treatment | 18,883,731 | View full Profile |
| Make a Donation | ||
| Name | Aarohi Rahate |
|
| UHID | KEM_BOM_AR_3025 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Other | |
| Estimated cost of treatment | 48,000 | View full Profile |
| Make a Donation | ||
| Name | Tiya Jain |
|
| UHID | KEM_BOM_TJ_3024 | |
| Institution | King Edward Memorial Hospital | |
| Disease | wilson Disease | |
| Estimated cost of treatment | 220,825 | View full Profile |
| Make a Donation | ||
| Name | b/o.Christina Evanjalin v |
|
| UHID | ICHHCE_CHEN_BV_3011 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SHIVAYE MALIVYA |
|
| UHID | AIIMSBHPL_BHPL_SM_3010 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 240,000 | View full Profile |
| Make a Donation | ||
| Name | B/O RAJKUMARI BAGHEL |
|
| UHID | AIIMSBHPL_BHPL_BB_3009 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 476,832 | View full Profile |
| Make a Donation | ||
| Name | RAVI RAMTRIYA |
|
| UHID | AIIMSBHPL_BHPL_RR_3008 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 960,000 | View full Profile |
| Make a Donation | ||
| Name | DIVY NAGAR |
|
| UHID | AIIMSBHPL_BHPL_DN_3007 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 30,000 | View full Profile |
| Make a Donation | ||
| Name | ASMA ANSARI |
|
| UHID | AIIMSBHPL_BHPL_AA_3006 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,356,008 | View full Profile |
| Make a Donation | ||
| Name | AMUL BAHPETEWAR |
|
| UHID | AIIMSBHPL_BHPL_AB_3005 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | X Linked Agammaglobulinemia | |
| Estimated cost of treatment | 480,000 | View full Profile |
| Make a Donation | ||
| Name | SIDRA KHAN |
|
| UHID | AIIMSBHPL_BHPL_SK_3002 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NETHRAN A |
|
| UHID | ICHHCE_CHEN_NA_2997 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | VELAYUTHAM B |
|
| UHID | ICHHCE_CHEN_VB_2996 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | BANU PRAKASH G |
|
| UHID | ICHHCE_CHEN_BG_2994 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 0 | View full Profile |
| Make a Donation | ||
| Name | TAARUNYA VYAS |
|
| UHID | ICHHCE_CHEN_TV_2989 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | LEONEL THOMAS A. |
|
| UHID | ICHHCE_CHEN_LA_2983 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | REINA S. |
|
| UHID | ICHHCE_CHEN_RS_2982 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | THAARUN KRITHVIK .D |
|
| UHID | ICHHCE_CHEN_T._2976 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MONISH B. |
|
| UHID | ICHHCE_CHEN_MB_2975 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||