भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | Sanvika. V.A. |
|
| UHID | ICHHCE_CHEN_SV_2934 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | M.S.VARUNIKA SRI |
|
| UHID | ICHHCE_CHEN_MS_2926 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | KARTIK MEENA |
|
| UHID | ICHHCE_CHEN_KM_2925 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
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| Name | G.KISHORE KUMAR |
|
| UHID | ICHHCE_CHEN_GK_2924 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Rudraunsh Ramnath Balakrishnan |
|
| UHID | KEM_BOM_RR_2922 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 3,360,000 | View full Profile |
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| Name | AKSHAYA M. |
|
| UHID | ICHHCE_CHEN_AM_2920 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | SRI YAZHINI B. |
|
| UHID | ICHHCE_CHEN_SB_2919 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | KRISHVITHA P.S. |
|
| UHID | ICHHCE_CHEN_KP_2918 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | MAIVIZHI S.K. |
|
| UHID | ICHHCE_CHEN_MS_2917 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | ATHARV MANOJ SHARMA |
|
| UHID | KEM_BOM_AM_2916 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 19,000,000 | View full Profile |
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| Name | SHRAVAN .V.D |
|
| UHID | ICHHCE_CHEN_S._2893 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
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| Name | JAANAVI S. |
|
| UHID | ICHHCE_CHEN_JS_2869 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | HARI NISHANTH M. |
|
| UHID | ICHHCE_CHEN_HM_2868 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | PRANAVA PIRAIYON M.K. |
|
| UHID | ICHHCE_CHEN_PM_2864 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 100,000,000 | View full Profile |
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| Name | SIVA SHANKAR S. |
|
| UHID | ICHHCE_CHEN_SS_2863 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | RISHI VENDRA P. |
|
| UHID | ICHHCE_CHEN_RP_2862 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
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| Name | VANSH SEN |
|
| UHID | AIIMSBHPL_BHPL_VS_2859 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 15,000,000 | View full Profile |
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| Name | ATHARVA SHARMA |
|
| UHID | AIIMSBHPL_BHPL_AS_2858 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 36,000,000 | View full Profile |
| Make a Donation | ||
| Name | IQRA FATIMA |
|
| UHID | AIIMSBHPL_BHPL_IF_2857 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 2,500,000 | View full Profile |
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| Name | NAIVEDYA SHARMA |
|
| UHID | AIIMSBHPL_BHPL_NS_2856 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | GLUTARIC ACIDURIA TYPE 1 | |
| Estimated cost of treatment | 600,000 | View full Profile |
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| Name | JANVI CHOURASIYA |
|
| UHID | AIIMSBHPL_BHPL_JC_2855 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | MPS 1(H) | |
| Estimated cost of treatment | 12,500,000 | View full Profile |
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| Name | ANSH GURJAR |
|
| UHID | AIIMSBHPL_BHPL_AG_2854 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 33,000,000 | View full Profile |
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| Name | RAJVEER LALORIYA |
|
| UHID | AIIMSBHPL_BHPL_RL_2853 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 33,000,000 | View full Profile |
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| Name | MOHAMMAD MOOSA KHAN |
|
| UHID | AIIMSBHPL_BHPL_MK_2852 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 33,000,000 | View full Profile |
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| Name | DARSHIL BHAWSAR |
|
| UHID | AIIMSBHPL_BHPL_DB_2851 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 33,000,000 | View full Profile |
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| Name | KARTIK RAJAK |
|
| UHID | AIIMSBHPL_BHPL_KR_2850 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 33,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kanishka S.N . |
|
| UHID | ICHHCE_CHEN_KS_2849 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nieman Pick Disease Type A | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | Thamizhisai S. |
|
| UHID | ICHHCE_CHEN_TS_2848 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sharlin Felishiya M. |
|
| UHID | ICHHCE_CHEN_SM_2847 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | PRINCE MEWADA |
|
| UHID | AIIMSBHPL_BHPL_PM_2846 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 44,000,000 | View full Profile |
| Make a Donation | ||
| Name | YADVENDRA SINGH RAJPOOT |
|
| UHID | AIIMSBHPL_BHPL_YR_2845 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 65,000,000 | View full Profile |
| Make a Donation | ||
| Name | HASNAN AHMAD |
|
| UHID | AIIMSBHPL_BHPL_HA_2844 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 36,000,000 | View full Profile |
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| Name | PAVAS PRATAP SINGH |
|
| UHID | AIIMSBHPL_BHPL_PS_2843 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 48,000,000 | View full Profile |
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| Name | Nigan Rathin N S |
|
| UHID | ICHHCE_CHEN_NN_2832 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dhanu shree .S |
|
| UHID | ICHHCE_CHEN_D._2831 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Baby of Sorna devi |
|
| UHID | ICHHCE_CHEN_BD_2830 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Ashvaruda Murthy S. R |
|
| UHID | ICHHCE_CHEN_AS_2829 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Vardhana sri N. |
|
| UHID | ICHHCE_CHEN_VN_2828 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | GLUTARIC ACIDURIA TYPE 1 | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Muhammed Habeebullah shah .K |
|
| UHID | ICHHCE_CHEN_M._2825 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Thiruvasagam M. |
|
| UHID | ICHHCE_CHEN_TM_2824 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
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| Name | SYLESH A |
|
| UHID | ICHHCE_CHEN_SA_2781 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Ragavi K. |
|
| UHID | ICHHCE_CHEN_RK_2778 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Ilamugil . K.K. |
|
| UHID | ICHHCE_CHEN_I._2777 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Ranjitha R. |
|
| UHID | ICHHCE_CHEN_RR_2776 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Inniyan N. |
|
| UHID | ICHHCE_CHEN_IN_2775 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Prader willi syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Baby of Vinitha Devi |
|
| UHID | ICHHCE_CHEN_BD_2774 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Velan M. |
|
| UHID | ICHHCE_CHEN_VM_2773 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DRAVIDAN S. |
|
| UHID | ICHHCE_CHEN_DS_2668 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
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| Name | DHANVI PATEL |
|
| UHID | ICHHCE_CHEN_DP_2667 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | ATHVIK RAJ MALHOTRA |
|
| UHID | ICHHCE_CHEN_AM_2666 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||