भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | Shravan B. |
|
| UHID | ICHHCE_CHEN_SB_3593 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SURESH S |
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| UHID | ICHHCE_CHEN_SS_3568 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dhicksan s |
|
| UHID | ICHHCE_CHEN_DS_3567 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | shefail s |
|
| UHID | ICHHCE_CHEN_SS_3566 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aathithyan S |
|
| UHID | ICHHCE_CHEN_AS_3565 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Niemann-Pick type C | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mercy mary m |
|
| UHID | ICHHCE_CHEN_MM_3564 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | wilson Disease | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RANITHA j |
|
| UHID | ICHHCE_CHEN_RJ_3527 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 1,000,000 | View full Profile |
| Make a Donation | ||
| Name | Nishaan t |
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| UHID | ICHHCE_CHEN_NT_3525 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | GLUTARIC ACIDURIA TYPE 1 | |
| Estimated cost of treatment | 500,000 | View full Profile |
| Make a Donation | ||
| Name | DHOSHITH M |
|
| UHID | ICHHCE_CHEN_DM_3524 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 3,000,000 | View full Profile |
| Make a Donation | ||
| Name | MITHRA . V |
|
| UHID | ICHHCE_CHEN_MV_3523 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | GLUTARIC ACIDURIA TYPE 1 | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KANISHKA S.N |
|
| UHID | ICHHCE_CHEN_KS_3522 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Nieman Pick Disease Type A | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | HASINISRI S |
|
| UHID | ICHHCE_CHEN_HS_3521 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | GOKUL V |
|
| UHID | ICHHCE_CHEN_GV_3520 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MOHAMMED SAMSU SHAYAN |
|
| UHID | ICHHCE_CHEN_MS_3519 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DIVYA THANGAVEL |
|
| UHID | ICHHCE_CHEN_DT_3518 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | PRANAY DUMPALA |
|
| UHID | ICHHCE_CHEN_PD_3517 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RAHINI J |
|
| UHID | ICHHCE_CHEN_RJ_3516 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MOHAMMED AYAZ |
|
| UHID | ICHHCE_CHEN_MA_3515 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Samyak Kamath |
|
| UHID | KEM_BOM_SK_3489 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 8,153,600 | View full Profile |
| Make a Donation | ||
| Name | sashmith sri. A |
|
| UHID | ICHHCE_CHEN_SA_3488 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | TIRUPATHI BLESSY T |
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| UHID | ICHHCE_CHEN_TT_3487 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sachiel Jo Claro A.J |
|
| UHID | ICHHCE_CHEN_SA_3480 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 30,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kocheziyan S |
|
| UHID | ICHHCE_CHEN_KS_3477 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 4,200,000 | View full Profile |
| Make a Donation | ||
| Name | Zeeshan Durvesh |
|
| UHID | KEM_BOM_ZD_3476 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 18,054,400 | View full Profile |
| Make a Donation | ||
| Name | Ahad Shaikh |
|
| UHID | KEM_BOM_AS_3475 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Organic Acidemia | |
| Estimated cost of treatment | 561,603 | View full Profile |
| Make a Donation | ||
| Name | Parth Bonde |
|
| UHID | KEM_BOM_PB_3474 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 150,000 | View full Profile |
| Make a Donation | ||
| Name | Samayra shah |
|
| UHID | KEM_BOM_SS_3473 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 2,410,200 | View full Profile |
| Make a Donation | ||
| Name | AYAAN GANGISHETTY |
|
| UHID | KEM_BOM_AG_3320 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 2,611,050 | View full Profile |
| Make a Donation | ||
| Name | B/O Pavithra J |
|
| UHID | ICHHCE_CHEN_BJ_3444 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sri yamini R |
|
| UHID | ICHHCE_CHEN_SR_3443 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | iniyavan R |
|
| UHID | ICHHCE_CHEN_IR_3442 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | kathirvelan V |
|
| UHID | ICHHCE_CHEN_KV_3418 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aaisha Nakhuda |
|
| UHID | KEM_BOM_AN_3417 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 200,000 | View full Profile |
| Make a Donation | ||
| Name | Harish S |
|
| UHID | ICHHCE_CHEN_HS_3416 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Jaishika J |
|
| UHID | ICHHCE_CHEN_JJ_3415 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Azlan Shaikh |
|
| UHID | KEM_BOM_AS_3414 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Nieman Pick Disease Type A | |
| Estimated cost of treatment | 72 | View full Profile |
| Make a Donation | ||
| Name | shaik aliyas ismail sahebgari Bibi fathima S |
|
| UHID | ICHHCE_CHEN_SS_3400 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pradee willi syndroe | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Thamizhini R |
|
| UHID | ICHHCE_CHEN_TR_3413 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | puviyarasan R |
|
| UHID | ICHHCE_CHEN_PR_3412 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | sri varshitha T |
|
| UHID | ICHHCE_CHEN_ST_3411 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mokith V |
|
| UHID | ICHHCE_CHEN_MV_3399 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MOKITHA D |
|
| UHID | ICHHCE_CHEN_MD_3398 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 16,000,000 | View full Profile |
| Make a Donation | ||
| Name | Vishal P |
|
| UHID | ICHHCE_CHEN_VP_3338 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mokith V |
|
| UHID | ICHHCE_CHEN_MV_3336 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Almajid M |
|
| UHID | ICHHCE_CHEN_AM_3319 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mitansh jain A |
|
| UHID | ICHHCE_CHEN_MA_3318 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Ajay K |
|
| UHID | ICHHCE_CHEN_AK_3317 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Shobana M |
|
| UHID | ICHHCE_CHEN_SM_3316 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Saran J |
|
| UHID | ICHHCE_CHEN_SJ_3315 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Suvathika k |
|
| UHID | ICHHCE_CHEN_SK_3314 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||