भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | Durvank Gawade |
|
| UHID | KEM_BOM_DG_3746 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Glutaric Aciduria Type I | |
| Estimated cost of treatment | 98,400 | View full Profile |
| Make a Donation | ||
| Name | Akshaya S.K. |
|
| UHID | ICHHCE_CHEN_AS_3745 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sairaj Varule |
|
| UHID | KEM_BOM_SV_3744 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 240,000 | View full Profile |
| Make a Donation | ||
| Name | Vishnumithran G. |
|
| UHID | ICHHCE_CHEN_VG_705 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | SHAI PRANAV K. |
|
| UHID | ICHHCE_CHEN_SK_3741 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | Manasvi Shinde |
|
| UHID | KEM_BOM_MS_3740 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 2,392,322 | View full Profile |
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| Name | Archita Joshi |
|
| UHID | KEM_BOM_AJ_3739 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 16,352,000 | View full Profile |
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| Name | Chanakya C. |
|
| UHID | ICHHCE_CHEN_CC_3732 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | VIBUSHANA N. |
|
| UHID | ICHHCE_CHEN_VN_3731 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | SANJANA S. |
|
| UHID | ICHHCE_CHEN_SS_3730 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | DEVANSH BHAVSAR |
|
| UHID | KEM_BOM_DB_3729 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 8,336,000 | View full Profile |
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| Name | DHIKSHAN P. |
|
| UHID | ICHHCE_CHEN_DP_3728 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | RIYA SHREE A. |
|
| UHID | ICHHCE_CHEN_RA_3727 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | BALA VENKATESH .V |
|
| UHID | ICHHCE_CHEN_B._3726 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | THENMOZHI K S. |
|
| UHID | ICHHCE_CHEN_TK_3725 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | LAKSHYA GUPTA |
|
| UHID | AIIMSBHPL_BHPL_LG_3697 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 56,536,320 | View full Profile |
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| Name | SHAHRISH AARA SODAGAR |
|
| UHID | AIIMSBHPL_BHPL_SS_3695 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | wilson Disease | |
| Estimated cost of treatment | 11,520 | View full Profile |
| Make a Donation | ||
| Name | HITANSH VERMA |
|
| UHID | AIIMSBHPL_BHPL_HV_3694 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 38,615,280 | View full Profile |
| Make a Donation | ||
| Name | SHIVAGINI SHAH |
|
| UHID | AIIMSBHPL_BHPL_SS_3689 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 300,000 | View full Profile |
| Make a Donation | ||
| Name | LOKESH THAKUR |
|
| UHID | AIIMSBHPL_BHPL_LT_3688 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 8,976,000 | View full Profile |
| Make a Donation | ||
| Name | Aadhavan M. |
|
| UHID | ICHHCE_CHEN_AM_3686 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | NAVEEN RAJ M. |
|
| UHID | ICHHCE_CHEN_NM_3683 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | DEVANSH SHARMA |
|
| UHID | AIIMSBHPL_BHPL_DS_3682 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Atypical hemolytic uremic syndrome | |
| Estimated cost of treatment | 12,690,000 | View full Profile |
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| Name | AKASH TIWARI |
|
| UHID | AIIMSBHPL_BHPL_AT_3679 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 360,000 | View full Profile |
| Make a Donation | ||
| Name | PRIYANJAL BALERAO |
|
| UHID | AIIMSBHPL_BHPL_PB_3677 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Turner Syndrome | |
| Estimated cost of treatment | 435,000 | View full Profile |
| Make a Donation | ||
| Name | SATYAM PANDEY |
|
| UHID | AIIMSBHPL_BHPL_SP_3676 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | Other | |
| Estimated cost of treatment | 600,000 | View full Profile |
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| Name | AMAIRA KHAN |
|
| UHID | AIIMSBHPL_BHPL_AK_3669 | |
| Institution | All India Institute of Medical Sciences, Bhopal | |
| Disease | MPS 1(H) | |
| Estimated cost of treatment | 2,400,000 | View full Profile |
| Make a Donation | ||
| Name | Hemanth G |
|
| UHID | ICHHCE_CHEN_HG_3668 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
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| Name | PACHAYAMMAL K |
|
| UHID | ICHHCE_CHEN_PK_3667 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Niemann-Pick type C | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | LAKSHAYA. S. |
|
| UHID | ICHHCE_CHEN_LS_3666 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Larons Syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NIKHIL. R. |
|
| UHID | ICHHCE_CHEN_NR_3665 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NATCHATHIRA T |
|
| UHID | ICHHCE_CHEN_NT_3664 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dharshan R |
|
| UHID | ICHHCE_CHEN_DR_3662 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Yusuf Momin |
|
| UHID | KEM_BOM_YM_3643 | |
| Institution | King Edward Memorial Hospital | |
| Disease | IEM | |
| Estimated cost of treatment | 30,000 | View full Profile |
| Make a Donation | ||
| Name | Rutvika Dabhade |
|
| UHID | KEM_BOM_RD_3642 | |
| Institution | King Edward Memorial Hospital | |
| Disease | IEM | |
| Estimated cost of treatment | 50,000 | View full Profile |
| Make a Donation | ||
| Name | MRUDULA BORHADE |
|
| UHID | KEM_BOM_MB_3641 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 103,600 | View full Profile |
| Make a Donation | ||
| Name | SAKTHI S. |
|
| UHID | ICHHCE_CHEN_SS_3640 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | ASHWANTH A. |
|
| UHID | ICHHCE_CHEN_AA_3639 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | THARAHINI V. |
|
| UHID | ICHHCE_CHEN_TV_3638 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | KABILESH .K |
|
| UHID | ICHHCE_CHEN_K._3637 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | THAKSHAN N. |
|
| UHID | ICHHCE_CHEN_TN_3627 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SARAVANAN S. |
|
| UHID | ICHHCE_CHEN_SS_3626 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Duchenne Muscular Dystrophy | |
| Estimated cost of treatment | 30,000,000 | View full Profile |
| Make a Donation | ||
| Name | Baby of Anjali G. |
|
| UHID | ICHHCE_CHEN_BG_3625 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Siya Daxini |
|
| UHID | KEM_BOM_SD_3613 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,314,400 | View full Profile |
| Make a Donation | ||
| Name | LITHISHWARAN . R |
|
| UHID | ICHHCE_CHEN_L._3611 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VARSHITHRAJ . S |
|
| UHID | ICHHCE_CHEN_V._3610 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 160,000,000 | View full Profile |
| Make a Donation | ||
| Name | Shravan B. |
|
| UHID | ICHHCE_CHEN_SB_3593 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SURESH S |
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| UHID | ICHHCE_CHEN_SS_3568 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Dhicksan s |
|
| UHID | ICHHCE_CHEN_DS_3567 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | shefail s |
|
| UHID | ICHHCE_CHEN_SS_3566 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||