भारत सरकार
Mr. Rakesh
Government of India is committed to secure treatment for patients of rare diseases in the country. However, in view of the high cost of treatment, resource constraints and competing health priorities, it is difficult for the Government to fully finance these treatments. To fill this gap this digital platform for individual, corporate and other donors has been created by the Government for facilitating voluntary donations for the treatment of patients with rare disease. The information relating to the patients, diseases from which they are suffering, estimated cost of treatment and details of bank accounts of the treating Institutions is available on this portal.
Individual/ Corporate/ Other donors can contribute by a secure online payment gateway to the bank account of one or more treating institutions.
Donations can also be made for the individual patient. This donation shall be utilized for the treatment of the specified patient. In case such donation is more than the amount required, the surplus fund shall be utilized for the treatment of other patients of Rare Diseases.
First time registration is required before making any donation. Registration process shall be complete after a verification of One Time Password (OTP) sent on registered Email Id and Mobile number. Donations can be made to an institution or an individual by selecting the respective bar. Multiple institutions or individuals can be selected while making donation.
Details of patients in urgent need of crowdfunding are displayed as pop-up window on the home page and also while making patient specific donation.
| Name | PRINCY S. |
|
| UHID | ICHHCE_CHEN_PS_3897 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SASTIKAA SRI .R |
|
| UHID | ICHHCE_CHEN_S._3896 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mohammed Arshan P. |
|
| UHID | ICHHCE_CHEN_MP_3894 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS 1(H) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Daniyal Khan |
|
| UHID | KEM_BOM_DK_3884 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Other | |
| Estimated cost of treatment | 2,500,000 | View full Profile |
| Make a Donation | ||
| Name | PRAJEENA V |
|
| UHID | ICHHCE_CHEN_PV_3871 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | PHENYLKETONURIA | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MAAJIDHA SAFIKA S |
|
| UHID | ICHHCE_CHEN_MS_3870 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | THONIKA SRI M. |
|
| UHID | ICHHCE_CHEN_TM_3854 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DHANU MITHRA . U |
|
| UHID | ICHHCE_CHEN_D._3853 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | NAKSHATRA NEELIMA . P |
|
| UHID | ICHHCE_CHEN_N._3846 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VISHVANTH V. |
|
| UHID | ICHHCE_CHEN_VV_3845 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SRI KRISHNA . M |
|
| UHID | ICHHCE_CHEN_S._3844 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | HADVIK M. |
|
| UHID | ICHHCE_CHEN_HM_3842 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DAIVIK MAGIZHAN. M. |
|
| UHID | ICHHCE_CHEN_DM_3841 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Cystic Fibrosis | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KISHORE B. |
|
| UHID | ICHHCE_CHEN_KB_3840 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VISHNU DAS .M |
|
| UHID | ICHHCE_CHEN_V._3839 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Raunak Prajapati |
|
| UHID | KEM_BOM_RP_3836 | |
| Institution | King Edward Memorial Hospital | |
| Disease | GLUTARIC ACIDURIA TYPE 1 | |
| Estimated cost of treatment | 135,000 | View full Profile |
| Make a Donation | ||
| Name | DIYAN SHIV K. |
|
| UHID | ICHHCE_CHEN_DK_3811 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Gaucher Disease (Type I & III {without significant neurological impairment}) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Mohamed Ayaan M. |
|
| UHID | ICHHCE_CHEN_MM_3805 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SHIVANYA SRI A. |
|
| UHID | ICHHCE_CHEN_SA_3787 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | BABY OF .VENKATALATHA . B |
|
| UHID | ICHHCE_CHEN_B._3786 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RAJ KUMAR .D |
|
| UHID | ICHHCE_CHEN_R._3785 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SENBAGAVALLI S. |
|
| UHID | ICHHCE_CHEN_SS_3784 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KAYALVIZHI R. |
|
| UHID | ICHHCE_CHEN_KR_3783 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Kaviyarasu .M |
|
| UHID | ICHHCE_CHEN_K._3782 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KAVINAYA .S |
|
| UHID | ICHHCE_CHEN_K._3776 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | MEENAKSHI .J |
|
| UHID | ICHHCE_CHEN_M._3775 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | KIRUBHASHINI .V |
|
| UHID | ICHHCE_CHEN_K._3773 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | INIYA R. |
|
| UHID | ICHHCE_CHEN_IR_3772 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SAI RAKSHITHA P. |
|
| UHID | ICHHCE_CHEN_SP_3762 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sushmitha M. |
|
| UHID | ICHHCE_CHEN_SM_3761 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Gaja Shree Bala M. |
|
| UHID | ICHHCE_CHEN_GM_3760 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RAKSHAN. S |
|
| UHID | ICHHCE_CHEN_RS_3756 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Larons Syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Srinath B. |
|
| UHID | ICHHCE_CHEN_SB_3753 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Aayat Khan |
|
| UHID | KEM_BOM_AK_3752 | |
| Institution | King Edward Memorial Hospital | |
| Disease | MPS IVA 8. MPS VI | |
| Estimated cost of treatment | 0 | View full Profile |
| Make a Donation | ||
| Name | SAHITYA A.D. |
|
| UHID | ICHHCE_CHEN_SA_3749 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Turner Syndrome | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Baby of Senbagam .S |
|
| UHID | ICHHCE_CHEN_B._3748 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Durvank Gawade |
|
| UHID | KEM_BOM_DG_3746 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Glutaric Aciduria Type I | |
| Estimated cost of treatment | 98,400 | View full Profile |
| Make a Donation | ||
| Name | Akshaya S.K. |
|
| UHID | ICHHCE_CHEN_AS_3745 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Sairaj Varule |
|
| UHID | KEM_BOM_SV_3744 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Tyrosinemia | |
| Estimated cost of treatment | 240,000 | View full Profile |
| Make a Donation | ||
| Name | Vishnumithran G. |
|
| UHID | ICHHCE_CHEN_VG_705 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Hunter syndrome (MPS II) (attenuated form) | |
| Estimated cost of treatment | 10,000,000 | View full Profile |
| Make a Donation | ||
| Name | SHAI PRANAV K. |
|
| UHID | ICHHCE_CHEN_SK_3741 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | Manasvi Shinde |
|
| UHID | KEM_BOM_MS_3740 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 2,392,322 | View full Profile |
| Make a Donation | ||
| Name | Archita Joshi |
|
| UHID | KEM_BOM_AJ_3739 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 16,352,000 | View full Profile |
| Make a Donation | ||
| Name | Chanakya C. |
|
| UHID | ICHHCE_CHEN_CC_3732 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Pompe Disease diagnosed early (Both infantile & late onset) | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | VIBUSHANA N. |
|
| UHID | ICHHCE_CHEN_VN_3731 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | SANJANA S. |
|
| UHID | ICHHCE_CHEN_SS_3730 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | DEVANSH BHAVSAR |
|
| UHID | KEM_BOM_DB_3729 | |
| Institution | King Edward Memorial Hospital | |
| Disease | Spinal Muscular Atrophy | |
| Estimated cost of treatment | 8,336,000 | View full Profile |
| Make a Donation | ||
| Name | DHIKSHAN P. |
|
| UHID | ICHHCE_CHEN_DP_3728 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | RIYA SHREE A. |
|
| UHID | ICHHCE_CHEN_RA_3727 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||
| Name | BALA VENKATESH .V |
|
| UHID | ICHHCE_CHEN_B._3726 | |
| Institution | Institute Of Child Health and Hospital for Children | |
| Disease | Other | |
| Estimated cost of treatment | 5,000,000 | View full Profile |
| Make a Donation | ||